A new project aimed at supporting healthcare professionals in the management of cystinosis patients through clinical recommendations and consultation checklist.

CYSTINOSIS GLOBAL CLINICAL RECOMMENDATIONS

CYSTINOSIS GLOBAL CLINICAL RECOMMENDATIONS

Designed to offer practical advice to improve clinical outcomes for adolescents and adults living with the multi-organ effects of cystinosis.

 

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CYSTINOSIS CLINICAL CONSULTATION CHECKLIST

CYSTINOSIS CLINICAL CONSULTATION CHECKLIST

Compiled by a steering committee of clinicians, the checklist aims to support HCPs by providing a focus to guide regular consultation with their cystinosis patients. 

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THE PROJECT

The Cystinosis Clinical Decision Support Programme is a new project that aims to support healthcare professionals in their daily practice with their cystinosis patients. The project offers educational and practical tools to support management of adolescent and adult patients living with multi-organ effects of cystinosis.

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